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Suffering, perseverance, character, hope. In that order

And hope does not disappoint us, because God has poured out his love into our hearts by the Holy Spirit, whom he has given us. Romans 5:5 Hope and disappointment do seem to go hand and hand. I think that is the reason why this scripture is so hard to accept or understand. We all have hoped for something and been disappointed. I hoped to grow up, get married, raise a family and be able to provide a wonderful life for them. Have many of my hopes been realized? Yes, I guess they have, but not without some very difficult trials along the way. Serious illnesses, severe financial struggles, marital strife, emotional and psychological pain all have led to some very trying disappointments in the midst of this hope. Recently I had some profound encounters with hope that gave me a deeper understanding of the relationship between hope and disappointment. My [...]

2017-01-08T20:42:49-05:00 August 26th, 2012|Categories: Caregiver, Life on Purpose|0 Comments

Love endures

Anyone who cares for a person with brain injury knows that routines are very important to help them organize their day, memory and indeed wrap their brain around the tasks ahead. Truly, all of us function best with routines and order in our lives, though some of us like it better than others. I land somewhere in the middle. I like order and routines, but I also like to go with the flow. I oftentimes have to go with the flow, even if it is rushing through my day like a dangerous river, in the form of a medical crisis or event demanding all of my attention. To facilitate structures, routines and help my daughter to learn the difficult concept of time, we have developed a specialized planner. In this planner, there is a calendar which is specifically made for Johanna, complete with picture cues and bold lettering and diminished [...]

2017-01-08T20:42:49-05:00 August 21st, 2012|Categories: Caregiver, Life on Purpose|0 Comments

Living life on purpose

"Purpose" is both a noun and a verb. The noun purpose is the reason for which something is done or created or for which something exists. The verb purpose is a transitive verb; “To intend or resolve to perform or accomplish.” I have a good grasp of the noun purpose. I am pretty good at reading between the lines to find the deeper meaning or purpose in letters, songs, and even in difficult situations. I have a clear sense of who I am and my purpose in this life. But it is that transitive verb which oftentimes escapes my grasp. I struggle with the intention and resolve to accomplish my purpose. For as long as I can remember, my Mom gave me purpose or at the least the hope of a purpose when she told me that she knew from my birth that God had a special plan for my [...]

2017-01-08T20:42:49-05:00 August 12th, 2012|Categories: Caregiver, Life on Purpose|0 Comments

Addiction and Grace

In the dark of night, in the prison of addiction, God offers us freedom as we surrender to grace. “During the night, the angel of the Lord opened the doors of the prison, led them out and said, “Go, take your place in the temple and tell the people everything about this life” (Acts 5:27). These words jumped off the page of my Bible as I was reading them the other day. In context, they refer to Peter and the apostles and their miraculous release from the prison they had been thrown into for preaching the gospel. It was an unjust imprisonment prompted by the jealously of another group of people. But what struck me is that every person can relate to the feeling of being imprisoned, if only in our minds. We can be imprisoned by judgmental attitudes, hatred and un-forgiveness. When we are unwilling to love and forgive [...]

2017-01-08T20:42:49-05:00 April 14th, 2012|Categories: Caregiver, Life on Purpose|0 Comments

Learning to ‘let go and let God’

Eileen Benthal's week brought lessons in responding with grace, as her youngest child underwent three brain surgeries at NYU medical center in Manhattan, where she is recovering in pediatric ICU. I spent last weekend away on a women’s retreat. I was leading the worship for 80 women who took time away from their busy lives and their families to commune with God and fellowship with each other. It was a beautiful retreat, filled with inspiration, laughter, tears and prayer. The presenter, Kathleen McCarthy, was excellent. She is a mother of twelve and a grandmother of fifty. If I thought that my life was complicated; compared to her life, mine is a walk in the park. When her children were younger, their house burned to the ground and they lost everything. When her youngest was just 18 months old, her husband was diagnosed with colon cancer and died. A few years [...]

2017-01-08T20:42:49-05:00 March 10th, 2012|Categories: Caregiver, Life on Purpose|0 Comments

Legendary child starlet gets behind a pet project helping raise funds for assistance dog program

By Amy Sacks / DAILY NEWS STAFF WRITER Saturday, December 18, 2010, 4:00 AM Legendary child starlet Margaret O'Brien was just a normal 3-year-old when she landed on the cover of the Saturday Evening Post with her cocker Spaniel-mix, Maggie. "He said, 'That's just the face we're looking for,' but he was talking about my dog," the actress said recently, recalling the fateful day in 1944 when she and her pup were discovered at a Los Angeles theater where her mother was dancing flamenco. The photo spread caught the attention of MGM Studios, which cast her in a one-minute role in "Babes on Broadway" and then a starring role in "Journey for Margaret." Judy Garland sang "Have Yourself a Merry Little Christmas," to O'Brien in her role as Tootie in "Meet Me in St. Louis." Unlike many child stars, O'Brien, who was born Angela Maxine O'Brien, was never in trouble in [...]

2017-01-08T20:42:50-05:00 December 18th, 2010|Categories: In The Media|0 Comments

Government-Run Health Care Would Ration Care for Disabled Children, Parents and Lawmakers Warn

Parents of disabled and special needs children are particularly concerned about a health care system that could end up rationing care for some people, including their own children. By Penny Starr (CNSNews.com) – Rep. Trent Franks (R-Ariz.) on Tuesday shared a personal story that shows why he is passionate about protecting the most vulnerable in society -- and why a government-run health care program would not only fail to offer that protection, but could end up rationing care for some people, including children with disabilities. At a Capitol Hill press conference, Franks said the parents who brought their special needs children to Washington, D.C., had the most compelling stories to share. “But I would cite just one (story) that has a personal connection to me,” Franks said. The story involved an “old man” and his firstborn son, who was born with deformities of the mouth – a “missing pallet” and [...]

2017-01-08T20:42:50-05:00 September 16th, 2009|Categories: In The Media|0 Comments